Butterfly skin disease). The 4-year-old was diagnosed ... and to help her adapt the team at Debra made special arrangements to support her - such as arranging for rooms where Bonnie’s bandages ...

Butterfly skin charity DEBRA brought Christmas to Scottish families impacted by the painful condition together at a special festive event. Children living with the condition met Father Christmas ...

Debra Graeme Souness says he and Isla have ... treatments that could improve the quality of life for people with butterfly skin. Andy described epidermolysis as a "brutal" condition.

Bevilacqua has lived his entire life with the debilitating disease Epidermolysis bullosa, or EB, a condition also known as “butterfly skin” which ... EB support group DEBRA Australia and ...

Champion Ironman Matt Bevilacqua has opened up about his incredible IVF journey to fatherhood and the cutting-edge technology ...

The Killashee Hotel and FBD Hotels teamed up to raise money for Debra Ireland, which supports those affected by Epidermolysis ...

Isla has had the genetic condition EB - known as butterfly skin - since birth ... a charity dinner and is vice-president of the charity DEBRA which supports people living with the condition.

ABBEYLEIX woman Emma Fogarty’s efforts to raise funds and awareness for the debilitating condition EB (Epidermolysis Bullosa) ...