Butterfly skin charity DEBRA brought Christmas to Scottish families impacted by the painful condition together at a special festive event. Children living with the condition met Father Christmas ...

Erica Sciascia is raising awareness about her daughter’s rare diagnosis of epidermolysis bullosa - even the slightest touch ...

Butterfly skin disease). The 4-year-old was diagnosed ... and to help her adapt the team at Debra made special arrangements to support her - such as arranging for rooms where Bonnie’s bandages ...

The Killashee Hotel and FBD Hotels teamed up to raise money for Debra Ireland, which supports those affected by Epidermolysis ...

Debra Graeme Souness says he and Isla have ... treatments that could improve the quality of life for people with butterfly skin. Andy described epidermolysis as a "brutal" condition.

Bevilacqua has lived his entire life with the debilitating disease Epidermolysis bullosa, or EB, a condition also known as “butterfly skin” which ... EB support group DEBRA Australia and ...