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来自MSN
1 天
This Rare Disease Could Be Draining Your Energy- Are You At Risk?
Addison’s disease is a rare autoimmune disorder where the adrenal glands don’t produce enough vital hormones, causing fatigue ...
11 小时
on MSN
Jennifer Cordts, breast cancer warrior who fought for awareness of rare disease that has no ...
Jennifer’s heartbreakingly honest interview to educate women about this rare breast cancer with no lump or tumor went viral ...
Dawn
1 天
A rare disease
The warning signs of CES, often referred to as red flags, include severe lower back pain, saddle anaesthesia (numbness in the area that would sit on a saddle), bladder or bowel dysfunction, and ...
16 小时
Delay in roll out of ₹974 crore under rare diseases policy hits patients
Advocacy groups urge Health Ministry to intervene urgently in delayed funding for rare disease treatments, impacting patients ...
EURACTIV
1 天
Bulgaria acknowledges discrimination against patients with rare diseases
A new binding decision in Bulgaria could add millions of leva to the health budget of one of the poorest EU countries, as ...
pharmaphorum
4 天
Exploring the future: Opportunities and challenges in cell and gene therapy for rare diseases
In this webinar, sponsored by IPG Health, we will explore the role that cell and gene therapies can play in treating rare ...
WATE Knoxville on MSN
1 天
Make-A-Wish sending Knoxville child to Disney World after battling rare disease
The dream of a young child from Knoxville who spent much of his early life battling a rare disease is coming true with some ...
India Today
6 天
Rare disease patients in crisis as delays stall national policy implementation
Patient advocacy groups warned that delays in implementing India's rare disease policy have left many, including children, in ...
Zawya
3 天
3rd Saudi Rare Disease Summit takes off today in Riyadh
Highlights the role of artificial intelligence in early rare disease detection, diagnosis, and treatment, with the ...
12 天
Arundel mom appeals for help as baby battles rare disease
Braeden Jacobs is just like every other 8-month-old child in many ways, but a rare disease also makes him like one in 5,000 ...
8 天
Northern Ontario mom trying to raise awareness, hope for families dealing with rare diseases
Her mother, Kelsey, living in Espanola, about 40 minutes west of Sudbury, welcomes all the activity because Iris has a rare, ...
ThePrint on MSN
3 天
36 drugs to treat cancer, rare diseases exempted from basic customs duty in Union Budget 2025
New Delhi: Finance Minister Nirmala Sitharaman announced a full exemption from basic customs duty (BCD) for 36 live-saving ...
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