Advocacy groups urge Health Ministry to intervene urgently in delayed funding for rare disease treatments, impacting patients ...
Addison’s disease is a rare autoimmune disorder where the adrenal glands don’t produce enough vital hormones, causing fatigue ...
Jennifer’s heartbreakingly honest interview to educate women about this rare breast cancer with no lump or tumor went viral ...
A new binding decision in Bulgaria could add millions of leva to the health budget of one of the poorest EU countries, as ...
Highlights the role of artificial intelligence in early rare disease detection, diagnosis, and treatment, with the ...
In this webinar, sponsored by IPG Health, we will explore the role that cell and gene therapies can play in treating rare ...
The dream of a young child from Knoxville who spent much of his early life battling a rare disease is coming true with some ...
New Delhi: Finance Minister Nirmala Sitharaman announced a full exemption from basic customs duty (BCD) for 36 live-saving ...
Elliot Horgan, 11, from Cahersiveen, was born with Sturge Weber Syndrome (SWS), a very rare condition whereby a birthmark is ...
A fundraiser in honor of a 10-year-old Springfield boy battling a rare disease is helping other local children in need.
Doug Paul was asked by Siren Interactive to write the fourth of five articles discussing rare disease and orphan drug issues. Pricing is one of the biggest challenges for any pharma company at the ...
Patient advocacy groups warned that delays in implementing India's rare disease policy have left many, including children, in ...