Diagnosis can sometimes be the most difficult part of a rare disease patient’s journey, and it’s with good reason that the process is often referred to as an ‘odyssey’ in these communities.
a patient concierge continuously provides personalised support to rare disease study participants and their caregivers, allowing them to feel more comfortable and secure throughout the duration of ...
SPRINGFIELD, PA, UNITED STATES, February 1, 2025 /EINPresswire / -- In the fight against cancer, common types such as breast, lung, and colorectal of ...
In December 2022, at the age of 33, Emily began suffering from severe bloating that made her appear "seven months pregnant".
Apr. 16, 2024 — Patients with suspected inflammatory bowel disease (IBD) could benefit from better testing protocols that would reduce the need and lengthy wait for potentially unnecessary ...
Chickenpox is a highly contagious disease that only affects a person once in their lifetime Only in rare cases can people ...
Objective To systematically identify and describe self-management interventions for adult patients with chronic kidney disease (CKD). Setting Community-based. Participants Adults with CKD stages 1–5 ...
On Monday, Feb. 3, the Daily Mail 's royal editor Rebecca English shared a new photo of Kate Middleton, which was taken by ...
Here are 12 expert recommended tips to start conversations and ask questions about your brain health with your doctor.
Gerontologist Cecilia Chan redefines dementia care with a beach retreat, bringing joy, connection, and relief to families and their loved ones.
Methods: A retrospective case note review was carried out on 114 patients in whom a diagnosis of pSS had been made in a department of rheumatology from 1979 onwards. The year of diagnosis of pSS was ...